Sparked AU Patient Summary Clinical Focus Group

AU Patient Summary CFG Artefacts

The following artefacts have been developed by the Sparked AU Patient Summary CFG and have been presented to the Sparked CDG.

Further updates or changes may be made to these artefacts as required to support the developed AU Patient Summary.

These definitions are current as at 4 March 2025.

Purpose of AU Patient Summary

A Patient Summary is a standardised collection of an individual’s health and healthcare information.  Rather than an entire health record, it is the minimum sufficient data to support facilitation of safe, quality and efficient care. ​ ​

The AU Patient Summary will support the consumer on their healthcare journey providing the consumer and their healthcare providers with timely and current access to relevant health information. It will enable individuals to share their healthcare information when travelling (including internationally).​

Characteristics of AU Patient Summary

The AU Patient Summary will: ​

• Be an interoperable set of clinical data. ​
• Will contain as up to date information as possible based on available sources at a point in time.​
• May be either an asserted or non-asserted patient summary​
• May include asserted and non-asserted information.​
• Will be portable and accessible to the individual and their healthcare providers. ​
• Will support individuals on their healthcare journey. ​
• Will support all transitions of care. ​
• Will be conformant to the International Patient Summary Standard.​

Patient Summary – Draft Definitions​

The following definitions have been discussed with the AU Patient Summary CFG and may require further development as requirements and implementation discussions mature.

Asserted information:​

Entered, retrieved or pulled in from existing data, may be copied or derived, with clinical verification​

Non-asserted information:​

Entered, retrieved or pulled in from existing data, may be copied or derived, with no clinical verification​

Asserted patient summary:​

A summary containing both asserted or non-asserted information, with clinical verification​

Non-asserted patient summary:​

A summary containing both asserted or non-asserted information, with no clinical verification

AU Patient Summary Consumer Journeys

Terms of Reference

Objectives and Responsibilities of the AU PS CFG

The role of the Sparked AU PS CFG is to provide clinical guidance and expertise on Australian patient summary information to support the Sparked program, such as:

• Clinical workflows and clinical scenarios
• Supporting the development of testing data for Sparked AU Patient Summary FHIR IG Project Team, such as:
  • Nomination/validation of testing personas/profiles from the Sparked test data.
  • Input & prioritisation of test data requirements, e.g. clinical histories, medications, procedures, problems/diagnosis, etc.
• Deep dive to understand the specific AU PS clinical drivers and provide feedback on items flagged for detailed discussion by the AU Patient Summary FHIR IG project team and/or by the Sparked community, e.g. detailed workflows, data flows, challenges, opportunities, etc.
• Provide clinical input and insight to AU Patient Summary FHIR IG Project Team as required
• Support AUCDI development as required by the Sparked CDG
• Contribute advice and support for developing materials to enable to the clinical education and understanding of Sparked AU Patient Summary, if required.

Out of scope

Broader policy discussions regarding reforms, implementation and development of an Australian Patient Summary, not relevant to the Sparked Program.

Meetings

Meetings will be held as required to support the Sparked AU Patient Summary program of work.

It is expected that meeting may be held on a fortnightly and/or monthly basis during the initial development stages, and transition to a monthly or bi-monthly basis as required during the later development stages.

Focus group meetings may be established as required to progress specific work.

The AU PS CFG meetings are time limited and shall be sponsored and chaired by an AU PS CFG member.

Governance Structure

The AU PS CFG is a sub-group of the Sparked Clinical Design Group, that will not be a decision-making body.

All minutes, artefacts and outputs from the AU PS CFG will be made available to the members of the Sparked CDG.

Additionally, relevant outputs shall be shared directly to the Sparked Technical Design Group/s (TDGs) and Sparked AU PS FHIR IG Project Team as required to support the development of AU Patient Summary.

The Sparked FHIR Accelerator Governance structure is outlined below:

*note: for information on the AU Patient Summary FHIR IG Project team, please refer to the HL7 confluence page, available here: AU Patient Summary FHIR IG Project – HL7 Australia

Development Context

The Development Context for how the AU PS CFG shall support and interact with the Sparked CDG’s development of the AU Core Data for Interoperability (AUCDI) and the Sparked AU PS FHIR IG Project Team is outlined in below diagram:

Membership

Th AU PS CFG will be made up of a maximum of 20 independent clinical experts or consumer representative members. Members have been selected to span the patient summary clinical perspectives from a variety of different clinical professions (e.g. doctors, nurses, allied health, aboriginal health workers, etc) and care settings (primary, acute, aged care, community, etc)

Membership of the AU PS CFG will comprise of selected Sparked CDG members that submitted an Expression of Interest (EOI) via the Sparked AU Patient Summary Clinical Focus Group EOI MS Form that was made available to the Sparked Clinical Design Group members and Sparked community.

All discussions in the AU PS CFG should be done so without prejudice, in a collaborative and inclusive manner to enable participants to genuinely share insights, expertise and advice.

Observers

Observers may be invited to attend to gather insights on group dynamics, participant engagement, and overall discussions.

Observers should refrain from participating in or influencing the discussions.

Conflict of Interest

Members are expected to declare any conflicts of interest, where they arise.

All minutes, artefacts and outputs from the group will be made available to the broader Sparked community via the Sparked CDG, Sparked AU Patient Summary FHIR IG Project Team and/or Sparked Technical Design Group(s) as required to enable and support the Sparked AU Patient Summary program of work.

Withdrawal from the AU PS CFG

Members may withdraw from the AU PS CFG at any time. It is important to note that data collected up to the point of withdrawal remains a valuable part of the project, and personal information will be managed with care, respecting privacy and confidentiality. To withdraw from the Sparked program or any of its design groups, please email Sparked@csiro.au.

Need more information or have a question that isn’t answered by our FAQs? Fill in our contact form or email the team at Sparked@csiro.au.